Dear Friends! Welcome to the Rusfond USA website. Rusfond USA is registered as а non-profit organization. With 501(c)(3) tax-exempt status that allows donors to get a tax deduction for their donation. We incorporated in May 2012 and our primary objective is assisting seriously ill children from Russia in accessing medical care in the US; medical care that may save their lives. This assistance will only be for those children whom the Russian healthcare system is incapable of helping and only for those children whose parents do not have the means to pay for medical treatment in American hospitals themselves.
The treatment and possible cure of rare diseases is very expensive due to their extremely infrequent occurrence (1 case per 10,000 thousand people both in the US and Russia). As a result, the supply of medicines and technologies to treat these rare diseases is limited, making them high-cost.
In 2012, the Russian Government officially adopted the term “orphan” or “rare” diseases for the first time. Starting in 2013, the government intends to provide funding for the treatment of 24 diagnoses. However, worldwide there are over 3,500 known rare diseases. American doctors have technologies that may save patients suffering from these diseases. The only challenge is in paying for the medical treatment.
The Russian Aid Foundation in Moscow, established by the Kommersant newspaper in 1996, will refer children to Rusfond USA for medical treatment in America. The Russian Aid Foundation is a leading children’s charity in Russia. Functioning much like the New York Times Neediest Cases Fund, the Russian Aid Foundation publishes stories of desperate parents, and encourages readers to donate money so that sick children can receive medical care. The appeals for help that the Russian Aid Foundation brings to light are re-published in print and electronic mass media in dozens of Russian regions as well as abroad – including in the US. The Russian Aid Foundation stories are popular on Russian television and the renown and trustworthiness of this charity has led hundreds of Russians living in America to make donations. That is how Rusfond USA came to life.
Here you can read letters from people who have nowhere else to turn, you are their last hope. We offer you their stories not to make you shed a tear – but instead in the hope that these letters will motivate you to feel stronger in your desire to help those who need your support.
We hope that with your assistance Rusfond USA will be able to make a change for the better.
Rusfond USA collects letters like those presented here and introduces them to those in a position to help. We urge you to read them. We hope you’ll understand it’s not true that kindness will save the world. Saving the world is not the province of us mere mortals. Yet if your act of kindness helps save a life, who knows, maybe you’ll feel the spark of God within your soul.