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How to help

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  • By sending a check to Rusfond USA:
    420 Lexington Avenue, Suite 300, New York, NY 10170

Other ways to help

We are looking for the following in-kind help:
  • Translators
  • Interpreters
  • Journalists
  • Media
  • Printing services
  • Graphic designers
  • Photographers
  • Drivers
  • English-Russian speaking doctors
  • Bloggers and others

  • If you want to help, please write to info@rusfondusa.org
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Dear Friends,

You are facing a serious situation and you have decided to turn to Rusfond USA.
We will try to do everything we can to help you. Please send the following information to info@rusfondusa.org: you first and last name, first and last name of the child who needs help, his or her birthdate along with an outline of the problem (i.e. diagnosis, name of the hospital and the cost of medical treatment if known). Please also include your full mailing address and zip code, your email address, if any, and your phone numbers.
Please note – we can only consider requests for assistance at American hospitals. If you are seeking treatment outside of the United States, please write to info@rusfondusa.org in Russia.

Print version
2012-08-08

A US hospital will examine Jennet Bazarova in November

On August 8th, on our website, we published the story of ten-year-old Jennette Bazarova from Moscow. She suffers from brittle bone disease - her bones break very easily. After another crack in her elbow her right hand stopped bending.
Doctors from the Children’s Hospital of Philadelphia say Jennette needs accurate molecular imaging in order to figure out the best way to help her. But the Bazarov family doesn’t have the resources to pay for the molecular imaging. ($16,560). We are happy to say that the Russian Aid Foundation has raised the funds for Jennette. Rusfond USA will cover the costs of living expenses and support for Jennette and her mother in America. Their doctor appointments are scheduled for mid-November. Jennette’s family is very grateful to everyone who has helped. Please accept our appreciation as well.

2012-08-08

A Very Rare Disease

Accurate molecular imaging and treatment in Philadelphia can save Jennette Bazarova’s life

Jennette Bazarova, 10 years old, suffers from brittle bone disease and pathological bony overgrowth. She needs to undergo medical examination and treatment in the Children’s Hospital of Philadelphia, USA. Total cost $16,560.

Jennette BazarovaOur daughter was diagnosed with this disease right after she was born. Jennette suffers from a rare form of the disease – even small joint fissures turn into callus looking like tumor. It restrains hands and feet movements and causes pain. Our family used to live in Turkmenistan, Turkmenian doctors recognized their powerlessness at once and sent us to Moscow where our struggle for the daughter’s health and life got started. A year ago we moved to Moscow to be closer to the doctors. Another fissure in the elbow joint resulted in inability of the right hand to bend. Surgical interventions had been contraindicated but we had to choose between shoulder joint atrophy and risk. We took a risk, but good results changed to a relapse. Now Jennette cannot bend her right hand because of a large tumor. Her hip joints are malformed, the right leg is shorter than the left one. Jennette is being moved in a wheelchair but she is not giving up. We have a tight schedule: school, swimming pool, English studies, sport dances in a wheelchair, but even Moscow doctors cannot cure the fast growing tumors. One of American children’s hospitals is ready to help us but we don’t have money to pay for the treatment,’ says Svetlana Bazarova, the girl’s mother, Moscow, Russia.

USD 16,560 is required to save Jennette Bazarova, a 10-year-old girl.

Natalia Belova, Professor, Head of Pediatric Department, European Medical Center (EMC), Moscow: ‘Jennette has a V-type of imperfect osteogenesis, a very rare form of the disease. Unfortunately, ways of treatment of bony overgrowth occurring in such patients are not known in Russia. Accurate molecular imaging identifying the related genic defect can facilitate selection of targeted therapy and special rehabilitation. Doctors of the Children’s Hospital of Philadelphia, USA, are ready to perform the required diagnostics.”
The Hospital invoiced the Bazarovs for USD 16,560 but the family doesn’t have such amount of money.
Dear friends! If you decide on saving Jennette Bazarova don’t be embarrassed by the cost of it. Your any donation will be gratefully accepted. You can transfer money to the Charity Fund RusfondUSA through the bank or PayPal electronic payment system. Thank you!
Expert Group, RusfondUSA

 

 Джаннет Базарова

Джаннет Базарова